We were able to go home on Friday afternoon but with the tube still in his nose and having to be nutritional feeds for 10 hours a day. We returned to the clinic on Monday and because he became sick again on Friday, Saturday and Sunday, he had only gained one pound. We were told he would most likely have to keep the tube for another 3-4 weeks until he reached his weight goal and maintained it. You can imagine how frustrating that was to hear!
We also found out that his pancreas was still swollen from his prior bout with pancreatitis so he was not able to receive one of the chemo medications on his protocol. They plan to wait til the next dose is due in 3 weeks and check his pancreas again to determine if they can administer it at that time.
So now we spend a lot of the day with him hooked up to the pump for the nutrition and he is not interested in eating otherwise. It's like a catch 22 situation, he won't get the tube out til he eats and he doesn't want to eat until the tube comes out. We have received a wealth of information regarding different things to try to get him to eat and hopefully something will appeal to him enough to overcome his apprehension.
He is still able to do schoolwork and has really become adept at playing halo. He received an X-box from his Aunt Patty Ann and since he has never played on one before thought he would not be very good. Well...he is loving it! I have to limit his time now so he can keep up with his schoolwork.
Our three weeks of daily chemo ended and we are on the schedule now for only weekly visits for a little while. It is so nice not to have to spend every day at the clinic!
We so appreciate everyone keeping up with Jon and know that we still need the prayers to help him overcome this . Thanks so much!
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